ER Twice In One Week

20170129_133616Both times it was to get STAT labs done, with negative results. I don’t regret going to the ER twice this week, but I am frustrated that I spent time and money only to find that I’m having an acute UC flare (of which I was already aware).

After I wrote about being super f*ing sick on Thursday, I felt strange and weak. So I decided to go to the ER to be checked for anemia, as I had been bleeding a lot and my GI nurse had suggested I go to the ER on Monday. So I went, they drew blood, poked me, started an IV and gave me fluids, and I was quite surprised that they gave me Morphine for the pain. I am not anemic. At all. In fact my Hemoglobin was 14.3, which is high/normal. WTF? How can this be when I’m bleeding so much? So I was released.

I decided to take 60mg of Prednisone and it has been helping–particularly my morning dose of 40mg (the 20mg evening dose is not as effective). Going to the bathroom less frequently and having less pain throughout the day. I have also put myself on a liquid diet, which sucks. I haven’t eaten solid food since Wednesday. Instead I drink apple juice mixed with pedialyte, water, and a cup or two of hot cocoa. Luckily the Prednisone curbs my appetite and gives me energy, so I’m not dragging too badly from not eating.

But I am hungry. And I am tired.

BG woke me up at 4am this morning and I couldn’t get back to sleep. I had posted on an IBD forum and one of the people who responded said I need to be checked for C.diff. At first I blew it off, but then I realized my recent symptoms have been very atypical for me. All this watery diarrhea, blood, and cramping. And I had just been on antibiotics for my vaginal tear, while also taking steroids–this often leads to a C.diff infection. I also know that taking steroids while infected with C.diff is THE worst thing you can do, so I decided I have to be checked at the ER today, because otherwise I couldn’t have the test until tomorrow and it would take days to receive results.

So here I am.

In the ER.

Again.

My C.diff test was negative. Which is good. I’ve received a full bag of IV fluids, which is also good because I’m losing a lot of fluids. The nurse just gave me a shot of some anti-spasmodic in my butt. That hurt. But if it keeps me from having debilitating cramps and running to the bathroom then I’m all for it.

The ER Nurse says I’ll be out of here in 15 minutes.

The Humira Nurse came to my house on Friday to talk about how it works. I need to talk to my GI Nurse tomorrow morning and see if my insurance has approved the Humira. I’m hoping to get approved, have the medicine shipped, and have the Humira Nurse come to my house and help me administer my “loading dose” this week. Might be wishful thinking to get it started this week. But fingers crossed.

And then, pray that it works.

XOXO,

MLACS

 

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9 thoughts on “ER Twice In One Week

  1. I’m sorry you are in the ER again, but so glad to hear the c.diff test was negative. Praying that you are able to feel well enough soon to eat, for your insurance company to approve humira quickly, and most of all for healing over all. XOXO

  2. Gah. My dear friend. I logged in to check in on you. While I’m relieved you got negative test results I’m also exhausted and frustrated for you. More than that though I’m sending up prayer – bring on the Humira relief. Stat!

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