I Did It! I’m An Ostomate!

I had my surgery late Tuesday afternoon on October 17th, 2017. I woke up to find I have several scars, a stoma, and a colostomy bag, and I was…

Relieved! Happy! Ready to jump up and go live that slice of life I’ve been sidelined from due to chronic illness!

I’ve been walking, eating low residue foods, and emptying/applying my own colostomy bags. I’ve been conservative with my pain meds and I’m ready to bust outta here tomorrow!

Mr. MLACS and my uncle drove me to surgery and stayed there all day and into the night because they didn’t even take me back until 4pm or so. I told them they should at least leave and go eat some delicious food, since I was starving but couldn’t eat. I told them if the shoe was on the other foot I would totally ditch them to go to the thai restaurant around the corner. But they stayed close by and ate at the hospital cafeteria.

The surgery went well and only took 2 hours vs. the usual 3-4 hours. I was told my colon was one of the worst the surgeon has seen–that was validating. CRS said he believes pathology will reveal I have Crohn’s Colitis, but we won’t know until next week.

I have ordered lots of samples of ostomy bags and accessories, so excited to try some stuff out–I haven’t particularly like the first 2 bags I’ve tried, mostly because they are one-pieces and the one I have now has a filter that gets super messy and takes for-ev-er to clean (sensura mio one piece). I will have to try a 2 piece tomorrow, hate to irritate my skin by changing it so much but I’m uncomfortable with the sensura mio one piece. It’s going to take some trial and error to find what I like.

I’m on A LOT of corticosteroids and cannot sleep (it’s 2:30am) even on percocet. I’m also very bloated from the steroids and cannot wait to get back to my 30mg oral dose and start tapering! Before long (God willing) I’ll be down to just 2 pills per day + my supplements! That’s kind of amazing.

I feel SO MUCH better with the colon gone–there is a tiny bit left actually–but I’ll deal with that later and my CRS said it shouldn’t give me much, if any, trouble.

I want to train for a marathon. I want to clean my house all day and play with BG without having to lay down every 15 minutes. I want to go back to nursing school. I want to travel. I want another baby. I want to do ALL THE THINGS!

It’s going to take some getting used to, but I think I will make my own way and figure it out. Being an ostomate is part of my destiny, and I’m going to embrace it and be the best version of myself–even better than before, I think.

XOXO,

MLACS

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It’s A Miracle!

Mr. MLACS finally started to sound like himself on Wednesday of this week, exactly one week after his SCA. His short-term memory is still recovering but he is otherwise the man I married.

He had a defibrillator implanted yesterday (Thursday) and did well, now he just can’t lift his left arm past shoulder height for 6 weeks.

I took BG to see him in the hospital on Wednesday and we brought him home today!

I brought super fancy donuts for all the nurses in the ICU and on the regular floor, to thank them.

But I didn’t get any donuts for us.

I have a good friend who is a fitness consultant to the military. She’s amazing. She made a nutrition plan for Mr. MLACS.

Now I’m trying to get myself ready for my surgery on Tuesday Oct. 17th.

I’ve got to get this colon out, I cannot take it any longer. I’m literally sitting on the toilet right now muffling screams, it hurts so bad. And the Prednisone is driving me nuts, I’ve got to get off of it.

I almost had to go to the ER this week because I spiked a fever of 102.3 on Tuesday evening and since I’m on prednisone I’m supposed to go whenever I have a fever and/or feel particularly bad. But I was so exhausted from being at the hospital already, that I begged the on-call GI to let me wait until morning and see if my fever would break, which it did. But I have felt weak ever since. And my incontinence is worse–I’m back to wearing depends 24/7, even at home when I’m 5 feet from the toilet. If I could rip my colon out myself, I would.

So please continue to pray for our family, that Mr. MLACS makes a full recovery and that my colectomy goes smoothly, without any complications, and that I heal quickly afterwards without complications.

XOXO,

MLACS

Aloha, Colon–Booked My Colectomy and Not Looking Back


So the obvious–I’m f*cking done being sick. Things have been worse the past couple of weeks, owing to our moving house (stress), my Stelara is wearing off (like clockwork), I lowered my Prednisone (down to 20mg), and the last f*cking straw–wait for it–I had the flu last week (just shoot me).

After a couple days of toileting 12+ times per day, mostly blood, straining (felt like my body was trying to expel my colon with brut force), dehydration, pain, weakness.etc. I called up my IBD Nurse and said “Listen up–I am well and truly ready to schedule surgery. Tell IBD Specialist she won’t need to have ‘the talk’ with me on Monday and we can just get down to business.” And I meant every word. Something in me just ‘clicked’ and I knew I was meant to have the surgery, and I felt relief and resolve to move forward.

So I met with IBD Specialist yesterday as well as the Colorectal Surgeon (CRS) and the Ostomy Nurse. IBD Specialist said “Just in case you’re interested, you could try Entyvio, Cimzia, or a clinical trial drug”, but I shook my head and said “Nope, drug therapy is not for me. I failed 3 biologics–they all worked but wore off too quickly because I metabolize them too fast, so drugs are not the answer”. Which IBD Specialist wholeheartedly agreed, and basically wished me well and sent me off to the CRS. I asked the CRS a few questions and made it known that I may look like hell *now* but I used to be hot, so minimal scarring would be ideal, as I aspire to be an athlete when I’m well again and to look good naked. I’ll get into the logistics of things in another post.

I saw the Ostomy Nurse, got marked where my stoma will go, and am now testing out a Coloplast mio bag. Testing the bag out is a game changer! Most people don’t but I think everyone should. It’s not bad at all–I forget it’s even there! Easy to conceal under clothing. BG thinks it’s cool. I was building it up in my head that it would be strange and awkward, but it’s not.

Of course then today my colon has been much better and I’m like “WTF colon–quit playing games” but I am still ready for surgery. Mr. MLACS only has to use a week of vacation and they’ll let him work from home the second week, so he doesn’t need to file FMLA. He and BG will stay in a hotel near the hospital (since it is a 2hr drive from where we live) until I’m released.

Ok so so so exhausted, but just wanted to let you guys know “the scoop”.

T-minus TWO WEEKS until surgery!!!

XOXO,
MLACS

I Need To Let Go But I Can’t

UPDATE:

Saw IBD Specialist and the Colorectal Surgeon this past Monday. There were some surprises.

1. IBD Specialist says if the Stelara does not work (and by “work” she means get/keep me in remission without prednisone) then she said my “only other options” are a clinical trial of a drug (cannot remember the name but started with a “p”) OR surgery…then she told me I don’t even qualify for the clinical trial so that leaves…surgery. M’kay then. I didn’t bother asking her why she changed her tune (initially she said I could try entyvio, xeljanx, etc.) because I had already resigned myself to surgery if Stelara doesn’t work. But I was taken aback that she straight up told me surgery is my only other option.

2. I have been “stuck” at 25mg prednisone for 3 weeks now and still having blood/urgency/straining/rectal pain/lower back pain/joint and muscle pain…I still have enough energy to live my life though and TBH vicodin has been my go-to for my aches and pains because all I need is 1/2 a pill and I feel fine. These aches and pains are only going to get worse as I wean off the prednisone and I don’t want to be reliant to painkillers, so I’m looking into Charlotte’s Web CBD oil. But more importantly, IBD Specialist said she’s ok if I wait 2 weeks post-my next Stelara injection to drop 2.5mg, but…

3. IBD Specialist wants to see me in 4 weeks and if I’m still struggling to wean off the prednisone then BOOM it’s time to schedule surgery. I was like “Um, I do not want to deal with this right now so can we schedule surgery for after the holidays? I mean, it takes a couple months to get on the schedule, right??” Thinking no big deal so long as I’m stable…but IBD Specialist’s eyes got all big and she practically shouted “NO!” She said she doesn’t want me on the steroids that long and surgery can usually be scheduled within 2 weeks time. I was NOT ready to consider surgery in October (but if you’ve been following my story then you know I’m just not ready for surgery, period, but trying to come to terms with it). IBD Specialist reiterated what I’ve heard many times “Most people say they wish they had had the surgery sooner after they realize how much better they feel post-surgery”. Which helps. But I’m still freaked the f*ck out.

4. IBD Specialist allowed that one of her nurses could help me give myself my 1st Stelara injection at my appointment even though it was technically 4 days early. For some unknown reason, CVS Specialty pharmacy shipped my freaking Stelara to their office, even after confirming that it was to be sent to my home address like half a dozen times. Bizarre. So btw I had to let CVS know that they flucked up and they are lucky I happened to have that appointment on Monday because its a 4 hour drive round trip–CVS said they didn’t know why that happened, oops, they are sorry *sigh*.

5. I told IBD Specialist that I always respond quickly to the biologics but my problem is they wear off quickly. IBD Specialist said there is no way she can justify moving my Stelara up from every 8 weeks to every 4 weeks because there is no evidence to support it (at this time). I told her it would probably stop the blood immediately and it did, just like last time. But my thought is: really, how much time would it buy me (to avoid surgery) anyway? So not faulting her for not trying every 4 weeks.

5. Then I saw the surgeon (CRS) and I liked him a lot! Easy to talk to and he surprised me by saying…

I MIGHT be a candidate for a j-pouch!!!

WHAAAAT?!!

Ok lets not get too excited because it probably isn’t the best option for me, but I’m thrilled that he didn’t automatically take it off the table as an option the way IBD Specialist did. CRS said that he would remove the colon and send it to pathology, and if it looked like UC instead of Crohn’s then the j-pouch could be considered.

6. CRS offered that I could have a colostomy instead of a ileostomy (leaving a small part of my colon), which confused me because I thought removing the entire colon was standard. He said it used to be standard. He then said many people prefer to take the whole colon out to avoid future disease and also because the output is thicker/smelly-er
and not as desireable with a colostomy bag. I said I’d rather do the ileostomy.

7. I asked about pregnancy with a stoma and he said it is very do-able and they take care to preserve fertility by wrapping the ovaries and fallopian tubes in some sort of gauze-like material that dissolves in 2 weeks–it prevents adhesions, which are the main threat to a womans fertility by having surgery. I said “Will I have to wait like 6 months post-surgery to try?” And he said no way, as long as things go well 3-4 months is plenty of time–this was another surprise.

8. I’m scheduled to see the CRS in 4 weeks when I see IBD Specialist, but if I’m doing well he said I should cancel. He also said I would have the opportunity to meet with his stoma nurse a couple weeks prior to surgery. I told him I’d like to actually try wearing a bag prior to surgery to see how it goes and he said he hasn’t had a patient ask to do that before but he’s sure the stoma nurse could help me do it.

So I left feeling like they “sold” me on surgery. But then started looking at the literature at home and began to feel uneasy again. That’s how it is–one minute I’m gung-ho and certain the surgery will improve my quality of life and allow me to do ALL the things. The next minute I’m freaking out about wearing a bag because it is undeniably a life changing thing.

Then I saw my OBGYN on Tuesday and he said that I should feel free to go ahead and get pregnant NOW even on 25mg prednisone because “lots of women take prednisone during pregnancy and stelara is a category B drug”. Pregnancy put me into remission last time. Maybe I should just go for it even though IBD Specialist acts like it would be criminal to get pregnant on prednisone. For all you ladies, my skin “down there” is a bit thin especially around my perinium and I have not had sex since January for fear of tearing (and because I was like, dying). But OBGYN gave me some estrace (estrogen) cream as it helps to thicken the skin and helps lubrication. So, I’m feeling a little braver about sex. But will wait until I’m ovulating to try.

9. I also saw my Dermatologist on Tuesday b/c I also have peri-oral dermatitis and some strange chin acne that the doc attributed to prednisone. Of course antibiotics would be the best treatment but I cannot take those so he gave me topical creams. This is ALL owing to IBD. Crazy how it affects our body in so many (crappy) ways.

10. My current situation: The Stelara injection worked very well…for 2 days. Since then I have been bleeding with every BM, having explosive diarrhea, cramps, straining, and urgency. My frequency is about the same and not too bad, maybe toileting 5x per day (really only morning and night when I’m home, so not inconvenient) *but* my rectum is sore every time I leave the toilet–I feel the need to lay down after a BM and that is a step in the wrong direction. My energy has been crappy this week too, and Mr. MLACS made it possible for me to just lay around all day Saturday while he took BG out-and-about. I used that time to look at various ostomy blogs, watch ostomy youtube videos, and try to wrap my head around what is happening/what is going to happen to me. I cried–not a lot–but I let out a few sobs that had been trapped inside my chest. I allowed myself to think about the “what if’s”. There is SO much to think about–I have no family here and no friends I would ask for help with BG or for myself–I think if Mr. MLACS takes off 2 weeks that will be enough for me to do light activity and care for BG…what if it’s not? My surgery is at a hospital 2 hours from home so where will Mr. MLACS and BG stay for that first week while I’m in the hospital (will need them nearby)? What ostomy supplies will work for me–what do I need to buy and how much will it cost (belts, underwear, new clothes?) What if I can’t enjoy the holidays with my family? My good friend and her son are coming to spend Thanksgiving with us–what if I can’t cook the dinner I want to make for us? (I mean I can order a meal but I love to cook and this would disappoint me.) What if I fall asleep on my brand new potterybarn couch and wake up covered in sh*t because my colostomy bag burst? What if I go through this surgery with the promise of “feeling SO MUCH better” but then I don’t???
And then I go to “Is it really THAT bad? Do I really NEED the surgery? Maybe I should just try to get pregnant…but what if I don’t go into remission and things get worse?”

ALL. DAY. LONG.

These questions and feelings bounce around in my head. And furthermore, my surgeon seems competent and my hospital is nationally ranked in the top 30 for Gastroenterology–I drive about 2 hours each way to see them because they are good.
BUT.
The 2 best hospitals are Mayo Clinic (Minnesota) and Cleveland Clinic (Ohio) and I have been encouraged by other ostomates to go to one of these places for a second opinion and if I need surgery. However, I’m too beat down right now and not ready to take the time and expense to go there. I’m afraid I’ll regret it if I don’t go and things go wrong , but I just don’t have much fight left in me.

For those of you who know me, you know I’m a fighter. So if I’m THST beat down, and I am, then something has got to give.

I’m going to speak with my EFT guru next week and I bet she will be able to help me through this and have peace with whatever decision is revealed through tapping. I can’t “unscramble” myself and I need someone to guide me.

Wish me luck. Send me prayers for peace and clarity and courage. Give me any advice you have. Any inspirational quotes (I am too overwhelmed to read a book right now though). Point me towards ostomate blogs. Thanks in advance for your support.

XOXO,
MLACS

Hair Today, Gone Tomorrow…

Y’all know I just spent all kinds of money getting my hair done. And now it is f*ing falling out.

I’m pissed.

My shower walls are covered in hair (as it comes out in clumps when I wash it). My shower drain is clogged. I’m pulling huge hairballs off my brush almost daily. There’s hair all over my clothes, the floors, etc.

I don’t know exactly why this is happening but my best guess would be the 6MP that I started taking a few weeks ago. The same sh*t that facilitated my gaining 10 lbs since I started it. Nasty sh*t. And I’m only on 50mg/day. That’s not even a proper dose for my size. Technically it is not supposed to “work” until you’ve taken it for at least 6 weeks, and it’s not considered very effective as an immunosuppressant at such a low dose. So *technically* since I’m no longer taking Humira and don’t need 6MP to keep antibodies at bay, my IBD Specialist told me I can quit taking it the last time I saw her. But I thought it was helping so she said “If it makes you feel better (as in, mentally better because she doesn’t believe I could have a clinical response sooner than 6 weeks) then you can stay on it until after your Stelara infusion”.

Well, I’ve had the Stelara infusion and it *is* helping. I feel better! I even felt brave enough to drop my prednisone from 35mg to 32.5mg on Monday. So hey, given all the sh*tty side effects and the fact that IBD Specialist thinks the 6MP is *moot* in my treatment, then I should just quit… right?

But I’m scared. I’m afraid that it (6MP) is working to some extent and that quitting will impede my prednisone taper. And I want off the prednisone NOW–I want my *face* back (because “moon face”).

Which brings me back to… Maybe instead of f*cking with all these drugs, I should just have the (permanent ileostomy) surgery already. I know a stoma is forever and it wouldn’t make my life “gravy” but I am pretty f*ing sick of my current set of issues and I might like to trade them in for a new set–you know, for variety.

And also, I would look horrible bald.

XOXO,

MLACS

More Drugs or Less Colon?

How many more drug therapies do I want to try? When will I feel “ready” for surgery (to remove my diseased colon)? Which surgery option is best for me (permanent illeostomy, j-pouch, k-pouch)?

These are the questions I have been agonizing over since I received results from my colonoscopy on May 2nd and blood tests from these past couple weeks. I have been anxious to learn what the IBD Specialist would recommend at my follow-up appointment this past Monday May 22nd. I was afraid she would only offer options I didn’t like and then bully me to pick one.

I went to the city for the appointment and left Mr. MLACS and BG back home, which was actually good because I needed the 4 hour round trip drive time to myself.

I was trying to act casual when I saw the MA, like “Hey girl” but my blood pressure gave me away–148/80. It was higher to begin with, like 150/90. I groaned and leveled with her that I had been stressing about the appointment. Filled her in on my progress post-colonoscopy: first few days thought I might die, added Cortifoam enemas and they helped, now I feel as good or better than I did pre-colonoscopy *but* it’s moot because I’m still on 40mg prednisone since I got sick when I tried to drop to 35mg. So basically, nothing has really changed.

Then I sat in the small, stark, window-less room by myself for 20+ minutes freaking out until IBD Specialist knocked and entered.

She wasted no time. Asked me questions. Discussed my test results. Then launched into a flow chart of treatment options, during which I was laser-focused, taking it all in and formulating questions to ask at the conclusion of her presentation. Must say, I love well organized notes and flow charts, so I appreciated her giving me the visual.

My test results:

  1. Colonoscopy showed severe left-sided colitis. However, there was no inflammation outside the colon (good) and all biopsies came back clean. I tested negative for CMV.
  2. I tested NORMAL for TPMT, which means I CAN metabolize 6MP and Imuran, so these ARE treatment options for me! Yayyyyyy!
  3. My Humira serum levels were pitifully low (2) and IBD Specialist said this indicates that the Humira isn’t doing anything for me. However, I tested negative for antibodies (to Humira) so it remains an option, albeit a weak one. Boooooo.

So with this in-mind, IBD Specialist presented me with treatment options:

1. Humira + Imuran

I went into this knowing my first choice would be to add Imuran to my Humira. I know the Humira HAS helped me (even if it doesn’t seem like it clinically) ¬†and I’m used to it–no negative side effects–so I don’t want to gamble on a different biologic. Since my Humira levels were low I asked about increasing my dose from 40mg/week to the max dose of 80mg/week, but IBD Specialist said 80mg has not shown to be any more effective than 40mg so she doesn’t prescribe the 80mg dose. Frustrating, but ok. Moving on. She said I can try adding the Imuran in hopes it will “boost” the Humira and make it more effective. I was SO relieved she gave me this option.

2. Remicade + Imuran

Even though I tried and “failed” Remicade, IBD Specialist suggested I try it again and heavily medicate (benadryl, tylenol, etc.) in hopes of avoiding a reaction. Like, apparently I should try it even if I do have antibodies. But after further discussion about my experience with Remicade, she decided it’s not an option after all. I was not at all interested in trying it again.

3. Stelara + Imuran

Stelara is a newer drug that has had great results for a lot of people–I’ve been reading peoples’ experiences on forums and it looks promising. It may take only a few weeks to reach “theraputic levels” or it may take months. It’s my second choice after Humira. I hesitate to switch though because I fear getting very ill again if I quit Humira, potential side effects of Stelara, and I want to have a baby and Stelara is a newer drug so there’s nothing to say of it’s safe for pregnancy or breastfeeding. But glad it’s an option.

4. Entyvio + Imuran

Entyvio is also a newer biologic and plenty of people who “failed” Remicade and/or Humira have found success with Entyvio. But it is slow to work–definitely slower than Stelara. So it would be my 3rd choice… except…

I’m really leaning more towards surgery.

5. Diverting Illeostomy (I think it is called?) Where they would disconnect my colon and give me an ostomy (poop in a bag), which could allow my colon to rest and heal. I crossed this off immediately, saying that if I am to have surgery then it will be THE surgery to remove the diseased colon.

IBD Specialist perked up and said surgery is a great option for me. However, as a “Crohn’s Colitis” patient I am not elligible for the J-pouch. Which I already knew. But I need a 2nd opinion before I will accept her diagnosis, and rule out the J-pouch as an option. I intend to seek a second opinion from the Cleveland Clinic. I have not shared this with IBD Specialist, because she acted indignant that I questioned her diagnosis in the first place. So that leaves the permanent illeostomy or a “continent ostomy” in the form of a K-pouch (I’m not considering BCIR). The illeostomy would *theoretically* be the simplest surgery (with no pouch to fashion) and much less chance of complications now or down the road. IBD Specialist said that since I have never shown inflammation outside the colon there’s maybe only a 2% chance of disease reappearing after surgery, so I could expect to live *MED FREE* as in no more pills, injections, infusions, enemas, steroids, etc. Buh bye medicine cabinet! Which is what I want–no more disease, no more meds, living life to the fullest. But then you have to deal with caring for an ostomy and learning to live with the bag. How will I wear clothes–what will be comfortable? What about when the bag leaks (everyone does sometimes)? What about the audible noises a stoma makes as it empties into the bag–will I avoid eating to avoid embarrassing noises in public? What if my skin is super inflamed by the adhesives used to attach/seal the bag to me–I do have reactions to adhesives (like from bandaids and the sticky pads they use for an EKG, etc.) so this is a serious concern for me. If I wanted or needed to remove my entire rectum it would require a 2nd surgery (I thought it could all be removed at once but apparently the rectum removal is complex). The resulting wound from rectum removal may take for-ev-er to close and many people are ‘oozing’ for a year post-op. So, it could be cut-and-dry or it could be more involved.

The K-pouch removes the entire colon and creates a resevoir pouch akin to the J-pouch, which holds waste and gives you some time in between needing to empty it. You have a “valve” on the outside and when you need to empty your pouch you use a catheter, insert it into the valve and it drains your pouch. You can wear your regular clothes without concern for concealing a bag underneath. You decide when to empty your pouch–no spontaneous noises drawing attention in the middle of a quiet room. No worries about a bag leaking, or changing your bag, or skin irritation from adhesives/leaks/etc. But since it is more complex it is also more prone to complications, and since K-pouches are relatively rare (only a short list of surgeons even know how to perform the surgery) you may well have issues finding someone local to treat you in the event that something goes wrong. Is it worth trying?

The J-pouch is most peoples’ preference because it removes the entire colon, fashions a resevoir pouch (J-pouch) out of your small intestines and then reconnects the pouch to the anus so that waste exits the “normal” way, albeit one can expect to need to empty their pouch at least several times a day so it’s still not ideal. The J-pouch generally requires at least 2 surgeries, though rarely will be performed all in one surgery–but that is not best practice. Many people require 3 surgeries, and that would be me. First they’d remove my diseased colon and give me a temporary illeostomy for several months. Then the second surgery they would create the J-pouch. Then several months later the final surgery would close the illeostomy and connect everything together. Three surgeries is a lot. Then there’s the chance that there would be lingering disease in my anus and it would either require me to take meds like I do now or have a 4th surgery to remove the J-pouch and go back to an illeostomy (or possibly convert to a K-pouch). Then there is “pouchitis” which some people (a lot) end up having “chronic pouchitis” and this requires them to be on antibiotics and who the hell knows what else to deal with it–not f*cking cool. I worry that I would be one of the “lucky ones” to have endless issues with the J-pouch, and what I really want (after 13 years of this disease) is to have surgery and be DONE with it.

Thinking about all this stuff is enough to make my f*cking head explode. On one hand, I’d rather have control over when to have surgery and where (such as traveling to Cleveland Clinic) and if I wait until I’m so ill that surgery is my only option then I may end up with a mediocre surgeon and far more complications. But on the other hand, I’m scared. I don’t want to regret whichever surgery option I choose (and FTR surgery is inevitable, just a matter of when). I have discussed it with Mr. MLACS but he’s not got much of an opinion except that he supports me having whatever surgery I choose. I wish my Mom was alive. Not because she would tell me what to do, or hold my hand, but because she would make me feel brave and go forward with whatever surgery without fear or regret. And I could count on her to help me and take care of BG afterwards. I can’t dwell on the way I wish things were, but I wish she was here.

So then, what is my plan?

  1. Humira + Imuran…except I tried the Imuran this week and it made me feel AWFUL. So now I’m going to try 6MP. If I can’t tolerate it at all then I will be so f*cked. Pray for me.
  2. Stelara + 6MP…or if I can’t handle 6MP then Stelara alone…maybe…or…
  3. Surgery

My goal is still to get into remission and off prednisone with drug therapy, and then try to have another baby. Or maybe even to try to have a baby with an illeostomy–but I don’t think I’d try it with a K-pouch or J-pouch simply because they would take awhile to heal and I’m about to be 38 years old, etc.

This…this is what I am working with right now. I actually left my appointment on Monday feeling sad, but relieved. The drugs might work, but if they don’t then surgery could be a great option–provided I don’t end up with complications. I mean, even with complications most people say they would do it again, so…

XOXO,

MLACS