The Aftermath: Traumatic Brain Injury

I am grieving right now, because Mr. MLACS has come so far…but he is not himself at all. And nobody can say how much he’ll recover or how long this might take.

His voice is different. It’s weak and soft and I don’t recognize it.

His personality is flat. Like he’s stoned, but he’s not on any mind-altering drugs anymore.

His facial expressions are odd. He has this smirk/smile that he does at inappropriate times and it creeps me out.

He remembers A LOT, which is good–his long-term memory is quite good.

But his short term memory is very bad.

And he is delusional.

He imagines things happened that truly didn’t or sees things that aren’t there (ordinary things like he thought his tablet was on the table).

I gave him his cell phone last night and he hasn’t texted or called. When I go see him he doesn’t ask me how BG is or what she’s up to–but he says he does want to get home to her…

But I can’t imagine him being home like this.

I can’t handle it.

It scares me to death.

I can’t have him around BG like this. If I’m freaked out by the changes in him, I can only imagine what it would be like for a little girl.

And I can’t trust him.

So far he’s shown no aggression or sexual inappropriateness but I worry. I can’t help it.

I won’t leave him alone with her. I can’t.

I don’t want him driving anytime soon if ever, and I can’t let him drive her because what if this happens again?

I feel like his death is imminent. I am scarred and have PTSD from his heart failure in 2014 and now this apparent heart attack (though docs are not sure if it was a heart attack, as his heart went into v-tach and then v-fib).

I want to run away because I can’t take this anymore. I want to protect our daughter and shield her from this pain and future pain. It’s her pain that kills me–she doesn’t understand why her daddy is gone. And also she is out of her element because…

We just moved into this new house two weeks ago. It is big and feels foreign to me. It’s full of bad memories, of the fire that happened and now this. I hate this house. I want out. I want to move back home to the Midwest.

You know we just moved to the South a year ago in September. I’m not comfortable here.

I need comfort and familiarity. People here have been very nice and reached out to help but they are either aquaintances or strangers to me. I’ve never gotten used to living here–really the trauma of the house fire, me being sick, and Mr. MLACS’s job being so demanding has kept me from liking it here. It’s also very conservative and that makes me uncomfortable as well.

But Mr. MLACS is the sole breadwinner. His job is here. They will make acommodations for him. He has benefits–including life insurance that I would desperately need when he dies, and he is not elligible for private commercial life insurance, for obvious reasons. So to move, he’d really need to get a different job in order to keep his benefits.

Or, he could end up on permanent disability. I doubt that though, because his functioning seems very high–for someone who died 5 days ago.

People tell me to be patient, he will get better (though how much better is a mystery) and don’t think too far ahead…

Seriously, that is the worst advice. I mean I appreciate their faith and optimism but I need to re-route my family’s future and that starts NOW.

So many things to worry about.

I need to have my surgery so I can feel better and have the stamina to deal with all of this. Then…

I need to figure out what to do–go back to school for nursing? Become a real estate agent? I want to be self-sufficient.

Sell all BG’s baby stuff because it’s just impossible to even consider another pregnancy and child under these circumstances? This makes me want a sibling for her even more–someone to weather these times with her…

My sister is currently here caring for BG so I can go to the hospital and be with Mr. MLACS. It’s not perfect–she smokes cigarettes and I hate having that around BG. Also she is messy and I am currently very anxious and OCD. But I’m so grateful she came to be with us. And my aunt and uncle are coming when my sister leaves sometime this week. I have not spoken to Mr. MLACS’s mother or sister and do not intend to involve them, as we have not been in contact for 2+ years and I do not want them involved with BG. I did speak to Mr. MLACS’s brother though and I dont know when but he said he plans to come see him.

There’s more but to summarize, I’m in a very fucked up situation. But it’s going to be ok–I’m going to take care of myself because I have to and make sure BG has a magical childhood no matter what. I’m going to do right by Mr. MLACS but BG comes first and he would agree. I love him and he loves me, but she is our world.

I am doing my best. That’s all I can do.

XOXO,

MLACS

 

 

14 thoughts on “The Aftermath: Traumatic Brain Injury

  1. I don’t what to say. This is too terrible to imagine. It sounds like a nightmare that you can’t wake up from.

    I cried as I read this.

    I wish there was something I could say that would give you comfort, but everything I say feels so hollow.

    I hope your family can pull through this calamity.

  2. Oh hon I’m so so sorry you are going through this. It’s just so unbelievable and heart wrenching. I’m crying as I read. I feel for you and wish so bad there was something I could do. I can only imagine how scary and confusing this all is and all with you being so unwell too. It’s unreal. Praying so much for you guys. I hope your hubby becomes more like himself in the coming days as he continues to heal. Praying. 🙏❤️

  3. I am sending you every ounce of luck and good fortune. I hope that you have a good outcome. I literally cannot imagine what you must be going through. Your caution is very warranted. You and your family are in my thoughts.

  4. So do the doctors think that he may have some sort of traumatic brain injury after falling unconscious? I’m sorry that you are having to go through this. It would be especially hard if you didn’t have a village of people to help at a time like this. I hope things start to turn around soon.

  5. Oh, sweetheart. I just commented on your post about your surgery and now realize that has been put on hold and things have just gone horribly awry for you. I’m so sorry. Things just keep going from bad to worse, eh? I wish there was something more that I could do other than offer a few words of encouragement, but I hope you know how strong you are and that you are doing an amazing job with this shitty circumstance you’re faced with. You inspire me. Love to you. xo

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